Hi Rex,
I was only going to reply to your post Rex, but I will post for all. It has been the personal experiences of people living with Type 1 that has helped me manage my Type 1.
I often wonder how Steve Renouf managed his Type 1 as the elite ruby league player, not only for the Broncos but also for Australia.
It is said that the definition of stupidity is doing exactly the same experiment over and over again expecting to get a different result or outcome.
We all know, as Type 1 diabetics, if we are experiencing hypers and especially hypos, we have to do something different to bring things back to normal.
About the time when I was diagnosed, DAFNE, dose adjustments for normal eating was being introduced but really did not take into account the effects of exercise or hard work.
I can remember being told off by my son's doctor after he had been recently diagnosed. He was a very active teenager and I saw that he was having a lot of lower blood glucose readings, so I got him to slowly drop his insulin injection. Well, you can guess the rest.
I have to say, in those early days after being diagnosed, I had a good team of experts helping and this is the reason why I have next to no diabetic health problems now.
But Type 1 diabetes does not stick to a set of rules as I was, too quickly found out.
I had been fishing for grey mackerel with my son for several days. I then went netting for barramundi by myself, using a smaller boat. Late afternoon, I checked my BGL had my insulin and meal, then I pulled the net in as the sun set.
The wind was picking up and I had to motor about 2 km from the protection of the bay, around rocks and as I motored through a 15 meter gap between large rocks to the landing, waves were breaking on to these rocks. I dropped the anchor and picked up my small diabetic esky. I had not walked far when massive hypo symptoms hit. I got a can of "real" soft drink from the esky in the ute, skulled it, that then another as I sat propped up against the wheel of the ute. After I had recovered sufficiently, I tested and the BGL with the Performa was 2.1 mmol/L. I can only guess that the high concertation that was required to avoid danger was overriding the hypo symptoms and it was only when I was safe, that the hypo symptoms kicked in.
Back then I was on NovoRapid and Levemir and after that event, I would not use insulin at all, while doing daily fishing trips. I would go 20 hours without insulin, eat very little, check BGL regularly, and only inject again when I was home.
Now days, when I am fishing, I am comfortable, even if my BGL is 5.0 mmol/L, injecting 2-3 units of NovoRapid and eat to boost my energy levels.
When I am fishing in creeks, there are rules that you have to obey. We all have Vessel Monitoring Systems so the boys in blue know exactly where you are. Instead of setting my three nets and waiting to catch fish, I use one net, 100m long, and find the fish. During a day's fishing, which can last up to 12 hours, I may have run and pulled in that net 15 times. I fill an esky, then go home; a good day's fishing, I may have three shots and a bad day, have 15 and only half filled the esky. I don't have to go a gym; my fishing gives me enough physical activity.
THEN there is that little Irishman called Murphy.
There is another saying, life was not meant to be easy, but please give me a break!
I have been going through a bit of diabetic denial, she'll wright and I know how to fix things up attitude. Well, this approach brought me unstuck the other day.
I had been fishing, had a good catch, processed the next day and the following day, I had to deliver the fish early that morning.
That morning at 5.52am, BGL 5.2 so cut the NovoRapid by a unit, drank my coffee quick and decided have a pie in town instead of cooking rolled oats. I had just started a new NovoRapid pen the previous night and this was on the coffee table. In my haste, I took the Ryzodeg out of my esky but left the empty NovoRapid pen. I had eaten my pie with peas when I discovered the empty pen.
Because I knew my levels would be high, I didn't test. The next test at 6.05pm was 29.5 mmol/L and this reading even shocked me. I had been busy all day but ate junk food. Again, did not test because I knew my levels were high but there was nothing I could do and that I could fix the mess up later.
I increased my NovoRapid but decreased my normal Ryzodeg of 30 to 20 units. Although my next BGL were 9.46pm 14.5 mmol/L and 11.03pm 10.6 mmol/L, I resisted the temptation to inject more NovoRapid. By 4.06am BGL was 4.6 mmol/L when I had a mandarin and 2 butter menthols. When I awoke again at 7.18am, my BGL was 2.8 and I had a doctor's appointment.
Before I handed him the meter, I explained the events of the previous day, then I added don't be shocked. The first three words were, " I am shocked." Back when my son was a teenager with diabetes and playing football and if the same thing had happened to him, more than likely, I would have dropped kicked him across the room.
This has been another wake-up call for me and it took two days of insulin adjustments before morning BGL were above 5.00 mmol/L so that I could get my fasting blood tests.
Tomorrow is my appointment with a Diabetic Educator and I will get the approval for a CGM.
Paul.
------------------------------
Paul
------------------------------
Original Message:
Sent: 15-08-2022 16:51
From: Rex
Subject: Exercise Month - Questions for the Accredited Exercise Physiologist
Hi,
I know we all have to find our own way to deal with this exercise issue.
What worked for me, particularly in scuba diving, where I couldn't have anything to eat on a dive, (was diagnosed with type 1, 2 years after getting my dive license, other wise at that time I wouldn't have been able to get the license)
I would forego my morning insulin injection, have free food for breakfast (2 eggs, and if low perhaps a small piece of toast with it)
My levels would climb up to 10-12 usually, and at the end of the dive, 7 mmol/L only once when after the dive was it 3.9 , and every other time was a good reading. Insulin sbs lunch after the dive.
And going to the gym in later years I always had breakfast and insulin when I got home.
Also gives a little break from worrying about what my levels were.
Original Message:
Sent: 8/11/2022 7:58:00 PM
From: Robyn
Subject: RE: Exercise Month - Questions for the Accredited Exercise Physiologist
Hi Paul,
Thank you for the detail of how you try to manage exercise hypo's. It's reassuring to know that the juggle is real and not just for me!
I'm going to scale back for a little while to moderate exercise while I sort through the carb and insulin dose maze, and try to get to an equilibrium I am comfortable with.
Thanks again for the insight!
Robyn
------------------------------
Robyn
Original Message:
Sent: 11-08-2022 13:02
From: Paul
Subject: Exercise Month - Questions for the Accredited Exercise Physiologist
Hi Robyn,
I can only offer you, Robyn, my experiences when I became a gym member and had very similar experiences with hypos.
Although now 70, I am only coming up to 14 years since I was diagnosed with diabetes.
Within two years, I had neuropathy developing in my feet even, although my 3 monthly HbA1c was always close to 7.
My Endocrinologist diagnosed the neuropathy being caused by the fast rise and fall of BGLs, at that stage.
By changing my diet and exercising, along with a lower average BGL target, I prevented the progression of neuropathy and I still have good feeling in my feet.
For regular exercise, I became a gym member and had the problems with hypos that you have described, Robyn. At that stage, I was very new to Type 1 and was still coming to terms with regulating insulin injections and carbs combined with exercise.
By matching bolus insulin, carbs and when I started exercising, I usually finished an hour session without too many hypos. But there were days, even with testing every 10 minutes and with "hypo fixes", I could not complete an hour period of exercise.
Although I changed to an "am -pm" split basal injection, I did not change the amount of total basal that I was injecting.
My HbA1c dropped to 6.5 then 5.2. This 5.2 result was dismissed by my Endo as most likely to not be correct because of the number of hypos that I had experienced just prior to that blood test.
Looking back now, I think that reading was close to being correct, because I was not using a CGM and I was waking up through the night with a lot of hypos of 2.8 mmol/L.
By reducing the pm basal insulin and matching this injection to the amount of physical activity, I prevented most of the night time hypos.
Even to this day, I still have problems getting bolus and basal injections correct after a period of inactivity then becoming physically active again.
On this first day of activity, I may have to inject more bolus but on the second day, I will have to reduce both bolus and basal injections.
Within the last 3 years, I changed to Ryzodeg (70% basal – 30% bolus) which I now inject only once at night. I still use NovoRapid for bolus corrections. Although I followed the recommendations of not changing my daily amount of Ryzodeg injection, this is why in ended up in hospital with a very stubborn hypo and qualified me for a subsided CGM. It occurred after several days of hard work.
This was a basal induced hypo and no matter what I did or ate, BGLs kept falling. I am now confident with changing my Ryzodeg and matching this injection with physical activity. If I am not sure, I will miss the night injection and inject the Ryzodeg the next morning.
My appointment with a Diabetic Educator has been brough forward to next Wednesday so I will back with a CGM, making life much easier.
Paul
------------------------------
Paul
Original Message:
Sent: 10-08-2022 08:58
From: Robyn
Subject: Exercise Month - Questions for the Accredited Exercise Physiologist
Hi Team,
My main problem with exercise is the crashing low's I can sometimes experience many hours later, even though I think I have adjusted my food and insulin correctly. This really, really puts me off doing exercise, because I don't want to deal with it and it's frightening. Then I beat myself up about not exercising!
Thank you for the opportunity to ask this question!
Robyn
------------------------------
Robyn
Original Message:
Sent: 01-08-2022 13:15
From: Diabetes Australia Community team
Subject: Exercise Month - Questions for the Accredited Exercise Physiologist
Hi Members,
We will be joined later in the month by an Accredited Exercise Physiologist to do a live Q & A session on the forum. Date and time to be announced shortly.
In the meantime please post in this thread any questions you would like answered by the Accredited Exercise Physiologist later in the month.
Thanks
------------------------------
Community Team
Natasha, Erin and Ange
community@diabetesaustralia.com.au
------------------------------