Hi Paul
Thanks so much for sharing your family experiences and knowledge
Yes l must check my levels with a finger prick more regularly
i know the sensor is in error after swimming heading for 4 when I feel fine and the finger check is nearer 6.
I avoid carbs with breakfast except for a little slice of sourdough. Even a small bowl of oats sends my levels up as I suspect would weetbix.
For a couple of months my low carb, low GI, high protein and good fats made me tire quickly in the arms while swimming but now I am fine. I am thinking my body has adjusted to getting energy from the changed diet.
Most people here would be familiar with Dr Brukner's Defeat Diabetes campaign for Type 2's
I have found his book and recipes excellent guidance in my case. His red,amber and green listing of foods is alone a valuable guide,
One final strategy I find useful is to at least have a walk after eating. Even 20 minutes seems to arrest levels.
Thanks again
Tony
Original Message:
Sent: 5/14/2024 3:05:00 AM
From: Paul
Subject: RE: Let's talk hypo treatments
Hi Tony
You are doing well to control Type 1 LADA by what and when you eat and by physical activity without insulin. Keep it up!!!
I already had a son who was diagnosed with T1, some 12 years prior to my diagnosis. My first diagnosis as Type 2, by my GP did not relate to my symptoms.
Being very fit, then within 3 weeks, losing a lot of weight and lacking energy but eating very high carbs so I could finish that year's cane plant, did not add up to Type 2. A reading of 27.3mmol/L put me into hospital. At the same time, I was contracted by the local sugar mill to keep the production of sugar in the premium quality range. This is where I caught the head cold and when my progression to Type 1 Diabetes started.
I was diagnosed by a young endocrinologist as LADA. Blood tests showed that both GAD and IA2 results were in the extreme range and came back as greater than the maximum for both tests. They were in the thousands!!!
I flew twice a year from the Whitsunday airport to Brisbane for appointments. He is now at Monarch University researching Diabetes. He was the one that prevented the progression of the peripheral neuropathy in my feet. From the time he diagnosed me as LADA until he left, he was my only endo.
Do not give up testing your BGL with a meter, Tony as this test will give you the earliest indication that something could be changing. A test, first thing of a morning than another, one and a half to two hours after breakfast, give the best indication of how things are going. With a higher than normal reading with a BGL meter over a period of time mean you should be seeking medical advice.
When I have been inactive for a few days and I am doing computer work of a morning and with my standard breakfast of coffee and Weet-Bix, I may have to raise my NovoRapid from 4 to 10 units. My educated guess, is because I am not active and with Glycogen being fully replenished, the liver is releasing too much Glucose. I have to drink my coffee (14 -18g carbs) over a period of 40 minutes and check the graphics to adjust my NovoRapid before I have the Weet-Bix. A higher than normal meter BCL and/or a normal morning BGL that keeps rising after insulin and after breakfast, tells me that I have to be more active.
So far you are managing T1 very well and as long as you keep on top of things, you will achieve the best outcome.
Best of luck. Paul
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Paul
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Original Message:
Sent: 09-05-2024 10:37
From: Anonymous Member
Subject: Let's talk hypo treatments
This message was posted by a user wishing to remain anonymous
Hi Susan
Tony here. I am late onset T1 diagnosed last year and age 72. Hope the below is not too much detail.
I am not on insulin but manage levels with diet, exercise and some yoda/meditation. My Hba1c was 11 but now down to 5.6.
I am not coeliac but diet basically avoids wheat etc. Thus typical breakfast is 2 eggs, avocado and salmon, lunch is salad often with can of fish, dinner is meat, low GI vegetables (eg broccoli, cauliflower, mushrooms, capsicum). Occasional desert is almond flour cake with strawberries, raspberries i.e. low sugar fruit, all sweetened a little with monk fruit that doesn't raise my blood sugar levels, and some cream. I now eat much more diary inc. cheese, yoghurt and cholesterol levels are still good. I snack on walnuts, almonds, seeds. All this is quite low on carbs so have started to add in a slice of toast at breakfast, and an apple or ornage in the afternoon.
Exercise is alternate days of swimming (30 mins) and gym (45 mins), and moderate walking or biking.
Original Message:
Sent: 08-05-2024 10:54
From: Susan
Subject: Let's talk hypo treatments
Hi. My first time on this forum. I'm really enjoying hearing from other T1 folk. Diagnosed at 64 and coeliac as well I'm battling the BG roller coaster. I would love more info for people with both conditions. Eating gf and low carb is not simple. Bread for example! Thanks for all the tips
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Susan
Original Message:
Sent: 07-05-2024 15:28
From: Diabetes Australia Community team
Subject: Let's talk hypo treatments
Hi Harwood,
Thank you for contributing to the conversation.
As with my reply to David, our online Diabetes Shop may be a help to you. They have the GlucoBlast (50pk) tablets and also the gel (15g). All products on the Hypo Treatment page are currently on sale too. Here is a link and remember to use the code VIPSHOPPER at checkout for free postage, for all Diabetes Australia members no matter what your spend is.
As there are a few who have commented about living with both T1D and coeliac disease in this thread (and there would probably be many others) would you find it helpful if I went to one of our health professionals to see if they have any other recommendations for hypo treatments, when living with type 1 and coeliac disease? Which might be fitting as it is coeliac awareness day on the 16th of this month, and I had already planned a post on this.
Thanks again to you and everyone else who has reached out in this post to share their treatments, and experience.
Have a great day, Ange.
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Natasha, Ange and Erin
Membership and Community Team
community@diabetesaustralia.com.au
Original Message:
Sent: 06-05-2024 20:55
From: Harwood
Subject: Let's talk hypo treatments
Hi David
I too am frustrated by very few pharmacies stocking glucose tablets. As I am a T1D with coeliac disease, most of the readily available jelly contain gluten (some of that are gluten free are also sugar free which defeats the reason for taking them to treat a hypo!). I have to order my glucose tablets (GlucoBlast or GlusoHit) on-line and in bulk).
Recently I got caught out whilst beginning a day walk in Parramatta. I had not put glucose tablets in my pack. I stopped at a large well-known discount chain chemist and asked the pharmacist for such. She recognised I was close to a hypo but could only offer me the standard jelly beans, which I thankfully accepted. (My endo has told that hypo treatmernt must always override my strict gluten free diet). Some of the large pharmacies stock glucose tablets for their on-line store but not in their bricks and mortar stores. I assume the local demand for glucose tablets for people dropping by a store are too low to make if economic (or profit??). I would be interested in other coeliac T1Ds' experinces with hypo treatments. As to the tiny amount of gluten I had to injest it would not cause any recognisable reaction as I am asymptomatic.
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Harwood
Original Message:
Sent: 03-05-2024 08:34
From: David
Subject: Let's talk hypo treatments
Firstly having a CGM makes it much easier to avoid hypos* but when it happens I use the GlucoHit raspberry glucose tablets, only because they are the only ones I can get at only one chemist in the area (regional NSW). I ordered some of the Citrus Glucology tablets online but as with these things, postage adds to the cost. Otherwise, the only glucose tablets available in chemists and supermarkets are the iNova Glucodin chewable tablets (not to be confused with Glucogen injection) - I like jelly beans but I don't find them convenient to store or carry with me.
I have always found it useful to keep a pack of iNova Glucodin glucose powder on hand because in some situations it is easier to dissolve a few teaspoons of powder in a little bit of water and swallow it rather than trying to crunch and chew up tablets e.g. the glucose powder is handy to have around after a visit to the dentist, for those who wear dentures and for sick days when you need a concentrated hit of glucose and don't much feel like eating.
I have found it useful to have barley sugars to suck on when I'm heading low is a good method of raising BSLs before going hypo, but not good to use for treating hypos because they take too long to dissolve. The glucose tablets are good to keep in the car (they store better than jellybeans) and easy to carry with you when you are out and about.
The lack of availability of flavoured glucose tablets at chemists has always frustrated me. As I mentioned above, only one chemist in the area stocks flavoured tablets so ordering them online and paying postage is the other alternative. Perhaps Diabetes Australia might be able to advocate with chemists to stock the diabetic specific glucose treatments.
*Comparing CGM readings (interstitial fluid) to finger pricks (capillary blood) the CGM will warn of a hypo at a higher reading than I would see on a finger prick i.e. my CGM is set to alarm below 3.9 mmol/L, if I do a finger prick to compare that reading it is invariably around 4.5 mmol/L - you personal experience may differ but it is a worthwhile exercise to compare the two - and always keep a blood glucose monitor (and in date test strips) handy because the CGM might fail at the worst possible moment.
These are very funny videos about managing blood sugar (BSLs are referred to in mg/dL, not mmol/L), well worth a look:
If Blood Sugar Could Talk [Type 1 Diabetes] part 1
If Blood Sugar Could Talk [Type 1 Diabetes] part 2
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David B.
Original Message:
Sent: 02-05-2024 12:43
From: Diabetes Australia Community team
Subject: Let's talk hypo treatments
Hi all,
We are loving the conversations that are happening within the community. There has been some great tips and advice, especially for our newer members joining us.
For our next conversation starter and advice thread that may help someone else: What is your go-to snack or drink option for a hypo treatment?
We look forward to hearing from you.
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Natasha, Ange and Erin
Membership and Community Team
community@diabetesaustralia.com.au
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